Wednesday, April 27, 2011

do's and don'ts of dealing with us sicko people

MOOCHING OF INTERNET SITE - Work (not sure if i should call it former work or work, or place i mooch internet- im working on that)

hello :)
first i want to thank everyone for being nice about this blog.  i am really excited about the non-profit and excited to organize a party :) i like parties

There are a few things i have learned during this past year of cancer life.  I thought I would share them.  if i say something that you have done, just know im not talking about you, you are perfect :)

DON'TS
1) Most imnportant - Don't tell someone with a terminal illness that, "well, i (you) could get hit by a bus tomorrow!) i know this is supposed to make me feel better, showing how bad bus drivers are i guess, but guess what, i could get hit by a bus too! so that makes me doubly fucked.  Yay! also, how many people do you actually know who got hit by a bus and died.  i havent really heard about many but maybe since i live in LA and no one really takes the bus i have a false sense of safety in the bus drivers.  maybe in say san francisco its different.  anyone- no dying bus talk.
2) dont tell someone who is on chemo that they look good.  for the most part it is such a lie! i know i look like shit.  all green and dirty (who has the energy to take a shower when you are filling your body with toxins).  if you tell me i look like shit when i do look like shit, when you tell me i look good, it means so much more.  oh, but you can always tell me i look skinny. heehee
3) dont ever say to someone who is on chemo that "you always seem tired and how could someone be that tired all the time. snap out of it." or say "wow you sleep a lot, you must be lazy" really?  hmmmm i think that one may be self explanatory.  of course sometimes i am lying and i just want you to leave me alone :) just kidding, i think.  but for the most part i am really fucking tired.  again, toxins rushing through this body.  swooshing around in the body.  like if you drank a lot of water and you think that you drank too much water and you swear you could hear the water moving inside your tummy (maybe that is just me but lets pretend you feel the same).  not only do i not want to puke when i sleep, (positive), i also dont have to think that, crap i feel lazy (see above).  one thing that goes through, i think, every person with cancer's brain is that no day can be wasted b/c you never know what tomorrow might bring (i could get hit by a bus!).  it feels wasteful to stay on the couch for five days every twenty eight days (my chemo cycle for the next year and a half).  but fuck it.  bring on the couch.

DO
1) say i look skinny ;)
2) say i look skinny while i am eating a pint of ice cream
3) the opposite of the don'ts

yay! do and don't of dealing with cancer people.  well, me.

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